The way I feel about caregiving is similar to the way New Englanders talk about the weather. We say "if you don't like the weather, wait 5 minutes, it'll change." Sometimes I feel that caregiving is a crushing burden that has overtaken my life making me bitter and angry. Other times, I feel that caring for Skip is a wonderful expression of love and it's great knowing how good she feels when she's lovingly well-cared for. I can experience variations of these 2 perspectives in the space of one conversation.
Lately, I've been mostly on the positive end of the pendulum. I do have a cranky moment at least once a day, typically when I'm tired at the end of the day, but primarily I'm in good spirits and upbeat. This is a welcome change for both Skip and me, since I was feeling darkly, negative and angry for months. (Is darkly a word?)
Another thing I feel as a caregiver is guilt .... What I do feels like it is never enough. I get angry. I sit on the couch playing games on my computer while other people (PCAs) take care of Skip. I'm not disabled and Skip is profoundly so. Of course, guilt isn't a very productive feeling and it can tend to turn me to the dark side. I try to psych myself out of it with a rational, internal conversation. Unfortunately, though, that niggling feeling of guilt manages eventually to pop up again. From what I've read from other caregivers, I think feelings of guilt go with the territory.
I wonder what other people think of caregiving and how I'm doing ...
Righting a Couple of Wrongs
6 days ago